The first medical condition that Philae will target is Epidermolysis Bullosa (EB), a very rare but lethal disorder for which there is presently no treatment or cure. Patients with EB are known as ‘butterfly children’ because their skin is as fragile as a butterfly’s wings. The slightest amount of contact or friction can cause serious damage to their skin.
Philae Pharmaceuticals was founded by the late Professor Marcel Jonkman, previously Head of Dermatology at UMCG, Dick Kellogg, Emeritus Professor of Organic Chemistry, and Dr Reinier Schwietert, Pharmacologist.
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